Today we went to Bristol to drop off some care packages for the families who are staying in Paul’s House (the family accommodation provided by The Grand Appeal charity) over the Christmas holidays. We know exactly how surreal it feels to be in hospital over the festive period and there must be even more challengesContinue reading “Better for Etta Kindness Campaign Day 26”
Tag Archives: NICU
Better for Etta Kindness Campaign Day 23
Today’s kind act is for two very deserving mums who both lost their little boys recently. It’s heartbreaking enough for your child to die, let alone during a global pandemic so I wanted to give them a few little gifts to show they’re not alone. I read ‘The Baby Loss Guide’ while on holiday afterContinue reading “Better for Etta Kindness Campaign Day 23”
Better for Etta Kindness Campaign Day 22
Today’s kind act is for some of our NHS heroes. I know this year it’s been great to see a new appreciation for our careers who work on the frontline but for Sam and I this definitely started last year after Etta was born. So many NHS workers were part of Etta’s short life butContinue reading “Better for Etta Kindness Campaign Day 22”
Better for Etta Kindness Campaign Day 6
Today’s kind act is to raise awareness for an amazing small charity called Little Hearts Matter. They are the UK charity who support anyone affect by the diagnosis of a single ventricle condition- this effectively means that a baby has half a working heart. Etta’s case was a little more complicated than most but usuallyContinue reading “Better for Etta Kindness Campaign Day 6”
Better for Etta Kindness Campaign- Day 2
Today I chose a present for Etta’s birthday from the Bristol Children’s Hospital wish list. The play department (which was a real source of joy for us and Ezzie while at BCH) have chosen the toys they think will be most popular . I was delighted to see some of the presents that I hadContinue reading “Better for Etta Kindness Campaign- Day 2”
🍈🍈 World Breastfeeding Week 🍼
I took breastfeeding for granted with Ezzie. Despite the few days of discomfort at the start and occasionally feeling resentful that it was all on me for night feeds, it was an experience I look back on fondly. I weaned him off when I became pregnant with Etta just because I thought sharing my bodyContinue reading “🍈🍈 World Breastfeeding Week 🍼”
Too Much Information
I said in a previous post that after you end up in intensive care you become very knowledgable about lots of different medical jargon. I remember speaking to my uncle (a paediatrician at GOSH) after our first scan with Etta before we really knew what it was. He talked us through some possibilities and saidContinue reading “Too Much Information”
Life in Intensive Care
Well, what a year this week has been! I wasn’t too sure what I wanted to write about this week but with all the talk in the news about CPAP, ventilators and hospital beds, I settled on something I thought was pretty topical at the moment- our experience of intensive care. Etta started her lifeContinue reading “Life in Intensive Care”
Welcome to the world Etta Grace Libi!
Every pregnant woman will tell you that the last few weeks of pregnancy drag- especially if you are overdue! I can add especially if you are waiting for a NICU cot to become available and you are waiting to embark on what will be the scariest time of your life! I was due to beContinue reading “Welcome to the world Etta Grace Libi!”
Etta’s Diagnosis
So where does Etta’s heart journey begin? I think it’s fair to say our lives changed forever on July 11th 2019. I feel very lucky to have had a really smooth pregnancy with Ezra and because of this I went into our 20 week scan with baby number 2- as I think most do- lookingContinue reading “Etta’s Diagnosis”
Better for Etta 