Today is our last kind act to mark Etta’s last day on Earth with us. We wanted to do something special to honour our little girl and this seems a fitting tribute. We have decided to sponsor a child from a developing country to receive paediatric heart surgery via the Healing Little Hearts charity. JustContinue reading “Better for Etta Kindness Campaign Day 28”
Tag Archives: chd
Better for Etta Kindness Campaign Day 22
Today’s kind act is for some of our NHS heroes. I know this year it’s been great to see a new appreciation for our careers who work on the frontline but for Sam and I this definitely started last year after Etta was born. So many NHS workers were part of Etta’s short life butContinue reading “Better for Etta Kindness Campaign Day 22”
Better for Etta Kindness Campaign Day 6
Today’s kind act is to raise awareness for an amazing small charity called Little Hearts Matter. They are the UK charity who support anyone affect by the diagnosis of a single ventricle condition- this effectively means that a baby has half a working heart. Etta’s case was a little more complicated than most but usuallyContinue reading “Better for Etta Kindness Campaign Day 6”
Better for Etta Kindness Campaign Day 1
Today we were kind to ourselves. After all- you can’t pour from an empty cup. I’ve spent all day crying but so overwhelmed by other people’s love and kindness for us. And not just today- but every day since Etta’s diagnosis. So today’s act of kindness is from you. Thank you. Thank you to thoseContinue reading “Better for Etta Kindness Campaign Day 1”
Etta’s Cardiac Arrest
*** Trigger Warning *** This post details the day of Etta’s cardiac arrest and photographs from that day so don’t read on if that will be a bit much for you ❤️ Yesterday was a really heavy day. I spent most of the day crying or on the verge of crying or with a headacheContinue reading “Etta’s Cardiac Arrest”
Too Much Information
I said in a previous post that after you end up in intensive care you become very knowledgable about lots of different medical jargon. I remember speaking to my uncle (a paediatrician at GOSH) after our first scan with Etta before we really knew what it was. He talked us through some possibilities and saidContinue reading “Too Much Information”
From the Mouths of Babes
It’s hard to find any joy when your baby or child is sick or dies. I remember it feeling so strange to laugh at the Gavin and Stacey Christmas special only a couple of days after she died. It felt like a betrayal to be smiling at anything. But in the hours, days, weeks andContinue reading “From the Mouths of Babes”
Welcome to the world Etta Grace Libi!
Every pregnant woman will tell you that the last few weeks of pregnancy drag- especially if you are overdue! I can add especially if you are waiting for a NICU cot to become available and you are waiting to embark on what will be the scariest time of your life! I was due to beContinue reading “Welcome to the world Etta Grace Libi!”
Etta’s Diagnosis
So where does Etta’s heart journey begin? I think it’s fair to say our lives changed forever on July 11th 2019. I feel very lucky to have had a really smooth pregnancy with Ezra and because of this I went into our 20 week scan with baby number 2- as I think most do- lookingContinue reading “Etta’s Diagnosis”
Better for Etta 