Today is our last kind act to mark Etta’s last day on Earth with us. We wanted to do something special to honour our little girl and this seems a fitting tribute. We have decided to sponsor a child from a developing country to receive paediatric heart surgery via the Healing Little Hearts charity. JustContinue reading “Better for Etta Kindness Campaign Day 28”
Tag Archives: CHD awareness
Better for Etta Kindness Campaign Day 6
Today’s kind act is to raise awareness for an amazing small charity called Little Hearts Matter. They are the UK charity who support anyone affect by the diagnosis of a single ventricle condition- this effectively means that a baby has half a working heart. Etta’s case was a little more complicated than most but usuallyContinue reading “Better for Etta Kindness Campaign Day 6”
Better for Etta Kindness Campaign Day 1
Today we were kind to ourselves. After all- you can’t pour from an empty cup. I’ve spent all day crying but so overwhelmed by other people’s love and kindness for us. And not just today- but every day since Etta’s diagnosis. So today’s act of kindness is from you. Thank you. Thank you to thoseContinue reading “Better for Etta Kindness Campaign Day 1”
This is grief (and this is and this is…)
Grief isn’t what I expected it to be. People don’t often talk about it, even though everyone will go through losing a loved one at some point in their life. I’ve never lost anybody close to me before and even if I had, I’m not sure it would have prepared me for Etta dying anyway.Continue reading “This is grief (and this is and this is…)”
🍈🍈 World Breastfeeding Week 🍼
I took breastfeeding for granted with Ezzie. Despite the few days of discomfort at the start and occasionally feeling resentful that it was all on me for night feeds, it was an experience I look back on fondly. I weaned him off when I became pregnant with Etta just because I thought sharing my bodyContinue reading “🍈🍈 World Breastfeeding Week 🍼”
Etta’s Cardiac Arrest
*** Trigger Warning *** This post details the day of Etta’s cardiac arrest and photographs from that day so don’t read on if that will be a bit much for you ❤️ Yesterday was a really heavy day. I spent most of the day crying or on the verge of crying or with a headacheContinue reading “Etta’s Cardiac Arrest”
Too Much Information
I said in a previous post that after you end up in intensive care you become very knowledgable about lots of different medical jargon. I remember speaking to my uncle (a paediatrician at GOSH) after our first scan with Etta before we really knew what it was. He talked us through some possibilities and saidContinue reading “Too Much Information”
Real Men Don’t Cry
When Emily started this blog I was really pleased that she had a way to express herself and explain her thoughts and feelings to everyone and anyone that cared. I didn’t for a minute think that I’d ever write down my own thoughts and feelings. I’m comfortable talking about my emotions (although I haven’t alwaysContinue reading “Real Men Don’t Cry”
Etta’s Diagnosis
So where does Etta’s heart journey begin? I think it’s fair to say our lives changed forever on July 11th 2019. I feel very lucky to have had a really smooth pregnancy with Ezra and because of this I went into our 20 week scan with baby number 2- as I think most do- lookingContinue reading “Etta’s Diagnosis”
Better for Etta 