Today is our last kind act to mark Etta’s last day on Earth with us. We wanted to do something special to honour our little girl and this seems a fitting tribute. We have decided to sponsor a child from a developing country to receive paediatric heart surgery via the Healing Little Hearts charity. JustContinue reading “Better for Etta Kindness Campaign Day 28”
Category Archives: CHD awareness
Better for Etta Kindness Campaign Day 6
Today’s kind act is to raise awareness for an amazing small charity called Little Hearts Matter. They are the UK charity who support anyone affect by the diagnosis of a single ventricle condition- this effectively means that a baby has half a working heart. Etta’s case was a little more complicated than most but usuallyContinue reading “Better for Etta Kindness Campaign Day 6”
🍈🍈 World Breastfeeding Week 🍼
I took breastfeeding for granted with Ezzie. Despite the few days of discomfort at the start and occasionally feeling resentful that it was all on me for night feeds, it was an experience I look back on fondly. I weaned him off when I became pregnant with Etta just because I thought sharing my bodyContinue reading “🍈🍈 World Breastfeeding Week 🍼”
Etta’s Cardiac Arrest
*** Trigger Warning *** This post details the day of Etta’s cardiac arrest and photographs from that day so don’t read on if that will be a bit much for you ❤️ Yesterday was a really heavy day. I spent most of the day crying or on the verge of crying or with a headacheContinue reading “Etta’s Cardiac Arrest”
Too Much Information
I said in a previous post that after you end up in intensive care you become very knowledgable about lots of different medical jargon. I remember speaking to my uncle (a paediatrician at GOSH) after our first scan with Etta before we really knew what it was. He talked us through some possibilities and saidContinue reading “Too Much Information”
Life in Intensive Care
Well, what a year this week has been! I wasn’t too sure what I wanted to write about this week but with all the talk in the news about CPAP, ventilators and hospital beds, I settled on something I thought was pretty topical at the moment- our experience of intensive care. Etta started her lifeContinue reading “Life in Intensive Care”
Welcome to the world Etta Grace Libi!
Every pregnant woman will tell you that the last few weeks of pregnancy drag- especially if you are overdue! I can add especially if you are waiting for a NICU cot to become available and you are waiting to embark on what will be the scariest time of your life! I was due to beContinue reading “Welcome to the world Etta Grace Libi!”
Etta’s Diagnosis
So where does Etta’s heart journey begin? I think it’s fair to say our lives changed forever on July 11th 2019. I feel very lucky to have had a really smooth pregnancy with Ezra and because of this I went into our 20 week scan with baby number 2- as I think most do- lookingContinue reading “Etta’s Diagnosis”
Better for Etta 