Today is our last kind act to mark Etta’s last day on Earth with us. We wanted to do something special to honour our little girl and this seems a fitting tribute. We have decided to sponsor a child from a developing country to receive paediatric heart surgery via the Healing Little Hearts charity. JustContinue reading “Better for Etta Kindness Campaign Day 28”
Tag Archives: heart baby
Better for Etta Kindness Campaign Day 17
Today’s kind act was a simple one- we put a few coins in the parking meter so pay for the next person’s parking. I took Ezzie to the hospital the other day (because he shoved a popcorn kernel up his nose 🤦🏼♀️) and when I arrived I realised I didn’t have my purse with me.Continue reading “Better for Etta Kindness Campaign Day 17”
Better for Etta Kindness Campaign Day 6
Today’s kind act is to raise awareness for an amazing small charity called Little Hearts Matter. They are the UK charity who support anyone affect by the diagnosis of a single ventricle condition- this effectively means that a baby has half a working heart. Etta’s case was a little more complicated than most but usuallyContinue reading “Better for Etta Kindness Campaign Day 6”
Better for Etta Kindness Campaign- Day 2
Today I chose a present for Etta’s birthday from the Bristol Children’s Hospital wish list. The play department (which was a real source of joy for us and Ezzie while at BCH) have chosen the toys they think will be most popular . I was delighted to see some of the presents that I hadContinue reading “Better for Etta Kindness Campaign- Day 2”
This is grief (and this is and this is…)
Grief isn’t what I expected it to be. People don’t often talk about it, even though everyone will go through losing a loved one at some point in their life. I’ve never lost anybody close to me before and even if I had, I’m not sure it would have prepared me for Etta dying anyway.Continue reading “This is grief (and this is and this is…)”
🍈🍈 World Breastfeeding Week 🍼
I took breastfeeding for granted with Ezzie. Despite the few days of discomfort at the start and occasionally feeling resentful that it was all on me for night feeds, it was an experience I look back on fondly. I weaned him off when I became pregnant with Etta just because I thought sharing my bodyContinue reading “🍈🍈 World Breastfeeding Week 🍼”
Being Etta’s Grandpa
I asked my own dad if he would like to write something on this blog for Father’s Day. He wasn’t too sure but reading his words I’m so glad I asked. It reminds me that the death of a baby or child isn’t just felt by the parents and that my own father is noContinue reading “Being Etta’s Grandpa”
Half a year and half a world away
This week marks six months since Etta was born. Time has been so warped by coronavirus that it feels like a lifetime ago. If she was still alive, it is a milestone that I definitely would have celebrated so feels only right that I still mark it even though she’s not here. So, what doContinue reading “Half a year and half a world away”
Etta’s Cardiac Arrest
*** Trigger Warning *** This post details the day of Etta’s cardiac arrest and photographs from that day so don’t read on if that will be a bit much for you ❤️ Yesterday was a really heavy day. I spent most of the day crying or on the verge of crying or with a headacheContinue reading “Etta’s Cardiac Arrest”
Too Much Information
I said in a previous post that after you end up in intensive care you become very knowledgable about lots of different medical jargon. I remember speaking to my uncle (a paediatrician at GOSH) after our first scan with Etta before we really knew what it was. He talked us through some possibilities and saidContinue reading “Too Much Information”
Better for Etta 